Ealing volunteer marks MS helpline's 30th anniversary

By Hannah Davenport 16th Nov 2021

Aleks was diagnosed with MS in 2011. (Image: MS Society)
Aleks was diagnosed with MS in 2011. (Image: MS Society)

A man from Ealing who lives with multiple sclerosis (MS) has shared the support he's given and received from the MS Helpline, as it celebrates its 30th anniversary.

The helpline was launched by the MS Society in November 1991 and supports tens of thousands of people affected by the condition each year.

Aleks de Gromoboy, 58, from Ealing, was diagnosed with MS in 2011.

He volunteers for the helpline but has also received support from the service in the past.

"I phoned the MS Helpline after I was diagnosed because I was having a difficult time with my employer and I wanted to understand what my rights were," said Aleks.

"For the first time since my diagnosis I was treated like a human being – MS wasn't my defining feature.

"The person I spoke to was kind, caring and took time with me to discuss more than just the question I called about.

"I was left with a real sense of wanting to help and so I began volunteering as soon as I could."

Last year alone, the helpline had over 26,000 enquiries on the phone, email and via Facebook messenger.

Aleks received training before taking up his voluntary role and now volunteers for half a day a week.

"Yes you can be affected by the calls at times – but there's always someone to debrief with. It is wonderful to feel like I'm helping people."

Aleks added: "Calls range from people in tears, asking for emotional support, to professionals asking for information. We also have experts on hand to help with specific questions, too.

"The majority of calls are from people with MS but we also have a large number of people affected by MS, like family or employers, asking for help and information too, and that's great."

Over the past year the MS Helpline has extended the support it provides in response to the COVID-19 pandemic.

An MS Nurse Service began at the start of the first lockdown and had 1,560 enquiries during 2020, befriending calls have also been added.

The MS Helpline offers support from a Welfare Benefits Advisor, an MS Legal Advisor and a physical activity service.

Abi Stidston and Julie Gaynor are joint Heads of Helpline at the MS Society, they said: "We're incredibly proud to be marking the MS Helpline's 30th anniversary this month and would like to say a huge thank you to all the staff and volunteers who've supported us over this time.

"Over 130,000 people live with MS in the UK and it can be relentless, painful and disabling.

"We want to be here for everyone impacted by the condition, whatever they're going through – whether they are newly diagnosed, have lived with the condition for decades, or are a family member of someone with MS.

"We do everything from providing emotional support, offering information around treatment and therapies to helping people with benefits and financial difficulties."

You can get in touch with the MS Helpline, Here.

To donate click, Here.

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